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Cake day: June 14th, 2023

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  • Oh missed this reply sorry.

    The thermos thing is a really good idea. I’m going to try that. Thank you.

    Thankfully asking about nausea / bowel things is pretty standard.

    Quickly feeling full is a struggle. To my mind with how little she’s eating it happens very quickly.

    I think one of the problems is just how many people she’s seeing. Problem is they don’t all speak to each other.

    Ol’ boy is the one managing it on a macro level, but I’m trying to get everything to fit together day to day as it’s a bit chaotic.

    For example, w/ her eye pressure meds (this is to prevent total blindness), can only take a few of them with food, but they interact w/ each other so you have to space them out. When you have random food refusal… it’s just super difficult to get it into a schedule. It’s a bit frustrating lol.





  • everyday ask her opinion about other things

    We do. That’s one of the harder things with this non-amnestic MCI. She remembers everything, has her opinions, remembers what’s happening currently in the news. There’s an aloofness there that is difficult to overcome when in conversation.

    The eating issues relate to a series of mouth ops in the past and now poor decision making about what she can (or will) eat. Only thing that slows that MCI business is eating and exercise. It’s basically compounding. Other thing with the MCI stuff is stress and anxiety. Ol’ boy and I are stressed about not enough food, makes her stressed, makes things worse. If ol’ boy and I aren’t banging on about food, she eats less which further… It’s fucked.

    E: In terms of long term when asking her it’s day by day.




  • Heading back down the beach today to tackle the unmentionable plant.

    Had a few run ins w/ ol’ girl over the last few days so time to give it a rest and let ol’ boy decide what’s next. Her weight has gone from 53kg -> 42kg over 5 weeks and I just cannot get that to turn around because of refusal. She has it all there, food, supplements, hubby is a doc, someone willing to cook whatever whenever. Makes me feel pretty bad that I just couldn’t do it.

    So pretty much looking at a PEG (feeding tube into tummy bypassing mouth / throat). Sounds bad but it’s not really, the alternative is far worse.

    Can’t win them all.